One goal for this blog is to create a blogroll of relevant blogs that I think Different Nesters would enjoy. I'm quite overwhelmed by the number of blogs just within the special needs parenting realm. To tell the truth, I'm getting a blogosphere headache! So if my blog roll is a product, the process is exploring blogs and ferreting out a few at a time to feature as I go along. Here are a few special needs parenting resources:
"When a Child Outgrows the Safety Net" by Lisa Romeo is a great article about the feelings a mom has as her special needs child enters adolescence. The article is adopted from an essay Lisa Romeo wrote that opens up a recently published anthology, Special Gifts: Women Writers on the Heartache, Happiness and Hope of Raising a Special Needs Child. I haven't read the book yet, but will soon and report back. It has gotten some positive reviews on Amazon. Lisa also has a blog about her experiences writing, working and mothering.
Mothers with Attitude is a web site written and edited by Terri Mauro, who has two adopted special-needs kids from Russia who are now teenagers. Terri is theParenting Special Needs guide for About.com, and the author of The Everything Parent’s Guide to Sensory Integration Disorder. This web site is is affirmative of our strengths and skills and even features - gasp - humor. Terri also has a blog, Parenting isn't pretty----but it sure is good for a laugh that details her experience raising her teens.
Miriam Mason is one of my autism mom group buddies who writes articles for Associated Content. Her article "Intuition versus pediatrician: trusting yourself" is an excellent article to share with parents whose guts tell them their child is developing differently, but are urged by experts not to worry. I for one have been there; when Sayer was not standing on his own at a year we were urged by our pediatrician to "wait and see" but by 14 months we insisted on physical therapy and by 18 months he was walking. PT was our "gateway therapy" as it turned out, and we're glad we didn't wait and see any longer.
I hope these links lead to inspiration. Next up, some links related to our lives as women in midlife.
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Trusting one's intuitions in the face of contrary expert advice is a tough one. On one hand, the parent -- as a participant observer, if you like -- is better placed to assess continuity and change in symptoms over time; on the other, they don't necessarily have the comparative context and technical knowledge to interpret what they observe (e.g. those parents who are convinced that vaccines "caused" their child's autism, for example). A big challenge is figuring out how to get the most "mileage" out of both sets of "experts" -- the observers and the interpreters -- and how both observation and interpretation can be made better. Regrettably, it takes time, and that is not the kind of thing that either parents, or doctors who are having to rush through their appointments, have.
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